Tuesday, November 24, 2009

more prayers

I was putting Elliot down for his nap the other day and this is what happened:
Me groaning when I get up off his bed
Elliot: mom, you're belly hurts now?
Me: no sweetie, its my whole body.
Elliot: oh, you feel better soon?
Me: well I'll feel better if you pray for my body.
Elliot: okay mom. night.
Me: sweet dreams.
I start to walk downstairs and hear elliot talking so I pause to see if he is talk to me and hear:
Elliot: Lord Jesus, i pray my moms body feel better and my moms body not hurt anymore. Amen.

It was so sweet I started to cry. He's only ever prayed before meals and sleeping times, never in response to a request. And you know what, I was able to lay down and take a nap while he napped that day. :)

Monday, November 9, 2009

1st OB at UCD

Okay, so here is the latest update. We went down to UCD Thursday for my first OB. We left early so we could tour the Ronald McDonald House and the Kiwanas House before my appt. They both offered about the same things, but the RMH was half the price (if there was a price at all). That could have settled our decision right then and there, but the KH would allow us to stay there the week before I'm induced since the doctors want me local just in case I go into labor on my own. RMH can't do this because they are a children's organization. I think we are still leaning towards the RMH though because their bedrooms were bigger and would allow for family and friends to stay a night or two on the futons in the room where as the KH had very small bedrooms.

After a quick trip to IKEA, we went to my OB appt where we met a student, a resident, and the big head honcho dr. they each asked their own questions, we heard Arden's heart again (means something so different now that we know what her heart looks like), and spoke with them about more testing. Apparently some of the tests done up here weren't done correctly or they still don't have the results. So they are waiting on Mercy to get all the results to them so they need to know what tests I need to redo and what they can use. They also said that my lightheadedness could be normal in pregnancy... that some woman do pass out (this has only happened twice), but it is usually associated with other health issues with the mom. They are scheduling some testing for me as well.

I also heard back from Arden's cardiologist and she is referring me to Standford so another team can look at the heart so the UCD team isn't the only one looking at the results. I've contacted Stanford and they are in the process of getting my files copied and faxed to them, and coordinating a time for me to come down. Once they have their own echos, all the teams working with us will look at all the results and decide where the best place will be for Arden to be born. We'll let you know more when we do.

One more thing, I just got a call from UCD and they finally got my 3 hour glucose test results and it turns out I'm a Gestational Diabetic again. Oh well. I had a few bites of cheesecake yesterday just incase. Guess that will be it for me. Please keep praying for health all around, for our finances as we are adding more trips to UCD and now to Stanford, and for our marriage. Eric and I have grown closer to each other through this and we want to make sure we are praying against any attacks that could come and try to get us at each other's throats. Thanks again to you all.

Saturday, November 7, 2009

Arden's 2nd Echocardiograph

Eric and I took this trip solo. We got in an hour late b/c they were behind schedule, but we got to watch some families that were there with their kids... somehow that was encouraging. We went back into the echo room where the same tech did all the imaging and Dr. Bhat came in as well to talk with us and oversee the captured images. We were VERY impressed with her again. She came in and started talking to me and then remembered Eric's hearing and apologized, looked at him, repeated what she said and asked if he could hear her and see her in the dim lighting. She then made sure that she spoke up and faced him. When it was time to do the "UCD talk to the med student" thing, she explained to both of us that she was going to switch from bedside talk to medical talk and if we needed to, we could interrupt her and the student, but would probably be mumbling and was that okay with Eric. He said fine and we smiled at each other. Such different treatment than Mercy.

Dr. Bhat explained that in her experience there was a loose 30/30/30 rule. 30% of babies will go downhill, 30% will stay the same, and 30% will improve... we didn't talk about the last 10%. After looking at the images, she said that Arden's heart looked about the same as it did last month so she felt we were in the 30% that would remain the same. This means that I'll hopefully be able to carry Arden to term and the future procedures will be able to be planned a bit more instead of reacting to an emergency situation. Dr. Bhat said that the only difference really was the pressure building on the left side of the heart, but that the heart had created two extra holes in the atrium septum to help release some of that pressure and that this was both unexpected and good! So PTL for that.

After our echo, we met with the pediatric heart surgeon that would be working on Arden's heart. He told us what we might expect after Arden is born but that we wouldn't know for sure until she was actually born. He talked about using a bypass machine that would breath for Arden along with pumping her heart so they could watch the pressure on the left side of the heart after she was born and go into surgery with more information. It was hard to hear that she might be on a machine, but that it was to give everyone more time: doctors to gather information, Arden to grow/develop more, etc. Again, we won't know if this is needed until after she is born. One uncomfortable moment was when he said that UCD would not be equipped to deliver the baby the first week in January due to staffing problems. If I naturally go into labor during this time, I will be forced to deliver at UCSF or Stanford. We asked if we should just transfer our care down to Stanford (our choice of the two) now and they said it was our choice. Although me going into labor 2-3 weeks early probably won't happen due to my history of having to be induced with Elliot, we didn't want to walk into a hospital without them knowing who we were. So Dr. Bhat said she would share all of our information with the dr. at Stanford in her position so if the situation arises, they would know who and what they were dealing with. This made us much more comfortable!

After the appts and meetings were over, Dr. Bhat said she had also scheduled a tour of the NICU for us if we had the time! Of course we did! So we drove over to the main hospital (a dry run for January), found the maternity parking, and went to the NICU. They were great. The security, the cleanliness, the personnel. All of it was above our expectations. The hardest part of the tour was actually walking into the rooms. We thought we'd just be shown the outside of the rooms b/c we weren't parents of the children, but we were cleared by those inside before we walked in, and we were hit with a serious taste of reality. Seeing the babies with tubes, and bandages, and breathing machines was really hard for both of us. Thinking of your child in that condition and seeing what it will look like were two different things for us that suddenly were crashing together. We cried. Well I did, Eric teared up and then gave me a big hug which seemed to shut off his tears and make mine fall harder. How does that work? While on the tour we were also able to see Labor and Delivery (huge rooms!), and the PICU where Arden will go after her surgeries before going back to the NICU.

All in all, it was a good trip with lots more information and experiences that gets us one more step closer to her birth. Please keep praying as we continue forward. Prayer for the team of doctors that will be working with both Arden and me, prayer for Eric and I as we continue to rely on our faith (have no idea how we would be still be going if we didn't have Jesus), prayer for our support networks as they continue to help us and process all of this in their own ways, and prayer for little Arden that she would remain strong and continue to do things (like making more holes in her heart) that pleasantly surprise the doctors. Elliot is doing better with our trips to the doctor which is a huge answer to prayer! A family friend has stepped in and said she would walk with Elliot as we have more and more appointments, and the consistency (not to mention her amazing personality and way with Elliot) has done him wonders!

The next appt is tomorrow (thursday) for my first OB at UCD. I'm praying that we'll catch a break somewhere and by a miracle, I'll have passed my 3 hour test. If this is true, you are all invited to a cheesecake feast at our place! I'll let you all know what happens tomorrow. Thanks once again for your humbling support and prayers!!! It is the most you can do and we are honored. Thank you.